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Event Dates

Event Calendar

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2020 Events

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13th and 14th January

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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24th January

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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Saturday 29th February

Rare Disease Day

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2nd and 3rd March

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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27th March

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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22nd May

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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1st and 2nd June

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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17th July

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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Friday 26th July

8th Annual Charity Golf Day hosted by Penfold Verrall.

Thank you to the companies for the auction & raffle prizes donated so far:

Royal Windsor Racecourse – Gift voucher for 2 Grandstand tickets for 2020 race season
Buyagift – Bungee Jump
B-Bakery – Afternoon tea for 2 at Brigit’s Bakery, Covent Garden, London. @BrigitsBakery; #Bbakery; #Bbus

 

 

 

 

 

 

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25th September

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

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Saturday 26th September

9th Annual WS Conference. 9.00 – 5.00 at Whittlebury Hall Hotel, Nr Towcester, NN12 8QH. Further details can be found on the conference page on website. Booking form can be accessed from that page or here.

Last date to book your place is Saturday 5th September 2020

5th and 6th October

Children’s Clinic, Waterfall House, the Rare Disease Centre at Birmingham Children’s Hospital. Places are by invitation only. Please DO NOT make any travel arrangements until you have heard from the hospital.

27th November

Adult Wolfram clinic, Centre for Rare Diseases in the Heritage Building at The Queen Elizabeth Hospital, Birmingham. Places are by invitation only, so please DO NOT book or make any travel arrangements until you have heard from the hospital.

5th December – TBC

SAVE THE DATE –  a night of 80’s music at St Paul’s, Worthing. Details to follow